Nate ran his life with Post-It notes. After we learned about his cancer, his note writing increased exponentially, partly because he had more time on his hands and partly because so many of his thoughts had “URGENT” flashing above them.
As the cancer spread, Post-Its piled up next to his lazy-boy, bringing unwelcome pressure with their presence. Although he kept writing almost till the end, he stopped reading his own notes half way through the six weeks. When that happened, I began removing the older notes, leaving the fresher ones for him to keep in his shirt pocket or hold in his hand.
Although his script had always been difficult to read, gradually it changed from the familiar, loopy hand of healthy days to an illegible chicken scratch. But God was merciful. As Nate wrote to himself, he seemed to know what the markings meant, never noticing the deterioration of his own writing.
Today I took all 115 Post-Its from those 42 days and spread them on the bed. Most were dated, making it easy to put them in order. As I read each one, the story of my husband’s journey from diagnosis to death was staring back at me.
The beginning notes were a mix of office reminders, days and times for doctors appointments and single word questions: “Back surgery 9/28. Dr. Mace 2:00. Stomach ache. Ulcer?”
On September 14 he wrote, “Melson. 1:35 pm, tumor on pancreas, lesions on liver, ultrasound.”
As I read Nate’s private impressions of his dilemma, my eyes filled with tears. Medical terminology popped up more and more between client phone numbers and court dates. One Post-It said, “Difficult road.” Another simply said, “Help.”
He listed bills that needed paying and people who needed to be told of his cancer. Nate’s brother Ken’s name appeared again and again, sometimes just his initials, a much loved friend continually on his mind.
Among the notes was his last commuter train ticket and a receipt from Panda Express. We’d shared a lunch there just before learning about his cancer. He also saved the parking pass from the hospital garage that same day. These bits of paper were a hold on our pre-cancer reality, because what we heard from the doctors about our future couldn’t possibly be true, could it?
One note included a list of doctor questions for our next meeting: “Life expectancy? Parameters? Time frame? Stronger meds?” At the bottom was a concern for Hans and Katy who were trying to get passport and visa issues cleared to come from England: “Hans, letter.” Nate asked the doctor that day to write a letter indicating it was urgent his son be allowed to come soon.
Another Post-It detailed personal documents he wanted to find, and at the very bottom he penned the word “bad”. His experience was so hurtful it couldn’t help but come out the end of his pen.
As I studied each note, tears plopping on them, I came to a square that simply said, in the strong, round letters of a young person, “I love you, Papa.” The timing was good, because immediately after that came Nate’s note with the words “Breath. Panic. Drowning. Urped up. Not good.” The lung tumor was pressing, making it hard to breathe.
Another note listed “Car title. Electric dog fence. Several phone numbers,” and the words, “No fun.” Nate never complained about his constant pain. He’d ask for meds but didn’t whine or express self-pity. At the bottom he wrote, “Trust and obey.”
Eventually there were no more business reminders, only medical events and terms: “Call dr. Cotton mouth. Chapped lips. Panic? Panic. Tests? Results?” Reading these notes, I’m newly impressed with the courage he displayed.
Nine days before he died, he wrote, “40th Roma.” He knew we couldn’t do much on our anniversary but wanted to do something. With the way he felt, I can’t imagine sitting in a pizza restaurant, but as always, he was putting me first. At the bottom he wrote the word “expectations”. I wish I knew what he’d been thinking.
On his last legible note, barely readable, are the words “Margaret Nyman. Blog.” But I’ll never know what he wanted to tell me.
“Many are the plans in a man’s heart, but it is the Lord’s purpose that prevails.” (Proverbs 19:21)