As Nelson wrote in his last blog post, he’s looking forward to the scans that are scheduled to happen this Wednesday. It will have been six weeks since he started taking the immunotherapy pills (two each day), and the upcoming scans will be a moment of truth: Are the pills working or not?
In recent days Nelson has been feeling almost like his old self, breathing well without extra oxygen, cutting back on the pain pills, sleeping less, and dealing with only mild nausea. But as is true of this cancer, no matter how good he feels, there’s always a new crisis quietly brewing in the background.
On Friday, September 16, he, Ann Sophie, and Will drove the 80 miles to Luke’s house to spend a quiet weekend away from the apartment and from all things medical. But during the night, Nelson spiked a fever (102.7) accompanied by chills so powerful he shook all over. His oxygen slipped to 80 with a heartbeat of 160.
On Saturday, the high fever and chills returned, prompting them to call back to Mayo’s for a doctor’s opinion. Their advice was for Nelson to head for the ER…again. So they left Luke’s in a rush, and he was checked into Emergency by late afternoon.
It was another nine hours before doctors finished all their tests and had the results in hand. Since his numbers seemed to be where they’ve been recently, many in the normal range, they weren’t sure what was causing the fevers, chills, fast heart, and low oxygen.
A thousand mg of Tylenol brought the fever down, but they hesitated to let him go without a reason for his symptoms. They did have a couple of ideas, though. The doctor told Nelson, “These pills you’re taking (immunotherapy) are hard core drugs.” In other words, it’s possible the weeks of taking them have accumulated somehow to now cause his body to react negatively.
Their other idea was that his cutting back on the opioids might be causing the same withdrawal symptoms as any addictive drug would cause.
Nelson hoped not to be admitted to the hospital again, and though the doctor suggested an overnight stay for monitoring, he chose instead to head home. But that wasn’t the end of it.
Today the fever and other symptoms have returned, and though Ann Sophie urged him to return to the ER, Nelson wanted to battle it out at home. They did call the doctor, who suggested they “pause” the immunotherapy pills for now. Nelson has four appointments at the Clinic this week, and as always, the medical staff will be current on all that’s occurred in these last couple of days.
While these new negative developments hang over Nelson and Ann Sophie, they did get some good news at the ER. A scan showed that the initial tumor, the one that has been causing Nelson to cough till he wretched, has shrunk by nearly half. We like to think that surely those powerful little pills are, indeed, beginning to overwhelm the cancer. His coughing has almost completely stopped.
Another plus is that his severe neck pain of a couple of weeks ago is gradually improving. They don’t know conclusively if it was a broken bone or cancer in the spine, but whatever it was, it’s been able to heal itself. This is refreshing news.
And so we await this week’s appointments, hoping for new hope—and a very positive moment of truth.
“Be strong in the Lord and in the power of his might.” (Ephesians 6:10)
We have been in and out of the country, different time zones and accessibility to the internet. Yesterday I was praying and wondering how this journey was going. Thank you for the update! Our prayers continue. The whys? The suffering? The stress? The hope? Each of these are hard. Knowing God has allowed this and He will not waste our pain is the thread to hang onto. Praying for strength and miracles.
I had been thinking of Nelson & how he was doing. Hopefully this is just a bump in the road & his dose of medication can be adjusted to his body response indicating what to do. Praying for the journey to healing.
Lois wells
Glad he is doing a bit better with the tumor shrinking to half the size and that his neck pain is gone too. Praying that some meds will be able to help him to heal. May God watch over you all, protect, guide and direct your paths. In Jesus name we pray amen.
God bless,
The Janusz family
Continuing to pray. And I know (as you do as well) how important those scans are. I learned from you, Margaret, that Abba is always good, no matter what our circumstances are. Dane Ortlund wrote, a friend quoted it, and I read it this morning: “Nothing can touch you that does not touch him. To get to you, every pain, every assault, every disappointment has to go through him. You are shielded by invincible love. He himself feels your anguish even more deeply than you do, because you’re one with him; and he mediates everything hard in your life through his love for you, because you’re one with him.” Ortlund continues, “Your suffering does not define you. His does. You have endured pain involuntarily. He has endured pain voluntarily, for you. Your pain is meant to push you to flee to him, where he endured what you deserve.” (How Does God Change Us? Crossway, 2021, pp 36, 43).
It is difficult to know what to say. Nelson has endured much pain and sorrow. We cry out to God to relieve Nelson’s pain and give him healing, comfort and peace. God hears our prayers and knows exactly how to proceed. May God’s love surround Nelson at every turn.