While relaxing at cousin Luke’s house over the weekend, Nelson spiked a fever, along with uncontrollable chills, necessitating a fast exit toward the Rochester ER—an 80 mile drive. Ann Sophie said that his shaking with the cold was so violent, he couldn’t talk. And it didn’t help him feel any better when his heartbeat flew up to 160 beats per minute. Apparently the powerful immunotherapy chemo had accumulated in the last month to the point that it was becoming too much to handle. But Nelson remained fixed on continuing treatment.
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September 20, 2022
Rochester: Somehow I kept from getting admitted into the hospital over the weekend. We were at Luke’s but had to call it early, to come back for medical attention. They couldn’t find anything that actually caused the 102.7 degree fever, so they cut me loose.
I’m holding strong and want to grind it out at home. Now I’m glad I said that, even though it was touch and go for a little while. Living slow one day at a time, trying to put together my health and build back up again. Backing off on the morphine has been working without revealing too much pain.
Been going though one of those burnout phases with this sickness. Sometimes I have the energy to fight and feel the fight in me, and I do it. But times like these I get tired and dread the days more and the nights, too.
I feel bad for a lack of gratitude, even though it’s a miracle I’m even alive at all. Without the Mayo clinic and the insurance we have, I’d have been long gone in July already.
Ralph and Astrid are still here, which is really nice for us, especially for Annso. We need the help with Will at the moment. Time moves slow at this apartment. Tomorrow we have a scan and an appointment to talk about my progress.
Mom will come and stay with me while Annso goes to Germany with her Mom. We try to march on with life, going to small groups and getting to know people from our church as if we’ll be there forever. We are even in the process of buying this old 3 unit rental house. We are further along in the process than ever before. It’s encouraging.
Will is healthy and life looks good from the outside. We hope my sickness doesn’t end in my death. We are asking God for 30 more years of life for me. I would call that a miracle, if he kept me around for that long.
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“Everyone who lives and believes in Me shall never die.” (John 11:26)