Nelson’s Journal, 7/27/22

Nelson’s fight with cancer continues with frequent appointments with doctors at the Mayo Clinic that usually include the whole family. Doctors and nurses seem fine with welcoming everyone into the exam rooms, stroller and all. But none of the appointments can tell Nelson what he really wants to hear—that he’ll live through this cancer. Even so, he believes he will.

[A reader warning: This post will be difficult to read, since we know the outcome.]

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July 27, 2022

Finished another couple appointments at the Mayo. Been feeling ok overall but lots of unknown anxiety. The Baby Boy is doing really good overall, and I’m super thankful for that.

We are putting our household together, and it seems like we might buy a house at some point soon. I just feel like it might be time. Other than that, there’s not a great reason to buy or not to.

My health is precarious at best. We are trying to jump through the hoops of the chemo and whatever the Mayo has for us, but it’s hard these days. There are different challenges with each phase.

At first, I felt better overall and could push through, but now, the feeling is weakness and panic. The panic attacks have been overwhelming and coming at all hours, day or night.

It’s Astrid, Annso, and I at the apartment now, with little Will in tow. Hard to put into words what things are like, but I thought I’d open up my mostly new computer and write out some thoughts, for lack of a better idea.

Restlessness—and just having the feeling that this will go on forever. I don’t know what to do to end it. I can’t breathe so good.

Annso is like my literal lifeline. I don’t know what I would do without her. She thinks of everything and literally helps me with everything all the time. God has given her to me like an angel. I couldn’t be more thankful.

We got through a couple doc appointments pretty well today, and now we’re back at the apartment. People follow the blog Mom writes and ask me about things. They pray, and the prayers work.

I try to keep ducking and swinging, even though it’s not easy. This is like nothing I’ve been though before. I couldn’t imagine it. I’m so glad I didn’t know it was coming. Wow. Cancer out of nowhere.

It’s like the worst nightmare that you can have, coming true in real life, in real time, no set duration. I pray for release from anxiety, Lord. I pray for the tools to use that the doc gave me. I don’t know how to do it or what to do. You’ve helped me in the past.

Annso and Astrid pray and are so faithful to help, and I’m so grateful for them. Thank you. Why do you do this to me? Why do you test me like this and twist me up like this? I don’t know how much longer I can do it, really. Please send relief.

The Word says to send the call for relief that a person would call out, and the cry would go out. Please do that and end this nightmare. It’s me and me alone who has this ailment that doesn’t end.

I know or at least seem to know that I will not die, but I’m fearful for some reason. We have verses written on the wall that declare things about you and your promises. I pray for the power to believe them to be true. Please let them be true.

How does a man overcome this? I read the Bible. I pray. I ask you for help, Lord. People pray, and I take a drug, and sometimes it works, and sometimes it doesn’t.

It’s 7:43 pm. Took 2 Lorazepam, and we’ll see what happens. It worked before, and nothing I know works like an actual drug, even though most people want to pray and sing and do Yoga or whatever to get through it. I need to interrupt it somehow [with drugs].

Lord, please help me. Where are you in times like these? A man left alone with his insanity. It’s like when I freshly quit drinking and couldn’t shake the feelings. Nothing took it away but another drink. You know the solution is also the kiss of death, but there it is, nonetheless. Please help, Lord.

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“We don’t know what to do, but our eyes are on You.” (2 Chronicles 20:12)

Nelson’s Journal, 7/25/22

When Nelson was younger and not yet submitted to Christ, he struggled with heavy bouts of fear. In July of 2022, Satan was up to his old tricks again, bringing fear back into his life—as if to kick a man who was already down. Nelson wrote about it in his journal.

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July 25, 2022

I have hardly known a time when I struggled more with fear than I do now, today.

Starting yesterday, while my brother Hans was visiting Annso, Astrid, Will, and I here in Rochester, we took a short walk around the block, which went fine until we returned and started eating dinner.

I felt fear overcome me like a panic I have not had since I was in college back in the ‘90s, or even before that. Hard to put my finger on the origin, but the feeling that I would be overtaken by it, eaten by it, or somehow destroyed by it became totally overwhelming.

I finally became humble enough to confess the problem to everyone, and they prayed for me. I helped myself along with a couple Lorazepam pills I had from the meds in my cabinet from the hospital.

After an hour or so, the feeling subsided, and I was able to sleep through the night. I can hardly put into words what it was (and even still feels) like. For someone who doesn’t struggle with stuff like that anymore, it’s been unreal.

I’m hopefully coming into a place of progress with the Lord in the area of fear. Being in the hospital and the feeling of being stuck there, powerless, alone even with people, unable to help myself, was and is totally foreign to me.

Is it chemical? Is it spiritual? I don’t know. I messaged the nice folks at Mayo, and they kicked into gear, offering a meeting on Wednesday, the day after tomorrow. My Palliative Care team will try to see if there is something I can do to add to my current Prozac instead of getting hooked on the Lorazepam. Apparently, it’s very addictive and has not so great side effects and withdrawal symptoms.

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“You came near when I called on You. You said, ‘Do not fear!’ ” (Lamentations 3:57)

Nelson’s Journal, 7/15/22

Nelson highlights the phrase “loss of control” as he views the events around him. He also refers to an emergency during which he ended up in the ER again, with severe breathing troubles. (Right)

After it was all over and he was stabilized, the staff told us they had thought he wouldn’t make it this time. And yet, he rallied once again…enough to enjoy receiving more visitors back at the apartment.

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July 15, 2022

We’re four at our Rochester apartment, now with Astrid. Mom swapped out with her after she arrived. Mom went back to Michigan, and the Michigan gang has sort of shunned them [all who’ve been with Nelson], because no one wants to get Covid.

It seems like the Michigan get-together has taken on a different feel than anyone thought it would. It’s a lesson in loss of control. The Ark [in Kentucky] was seen, but not by all. Pictures were taken, but not with everyone in at the same time. Mom was honored because everyone made an effort.

Meanwhile, people came to see me in case I didn’t last much longer, but it seems at the moment that I might be around for a while. I’m thankful for that. Thank you Lord for my being able to see Hans, Klaus, and Lars [brothers], and everyone else who came up here. Thank you for carrying me through this time, even though I was pretty close to the edge a time or two there.

Thank you that Astrid is here with us and for the chance to get to know her better. Thank you for working all things together for good to your purposes, no matter what the path looks like.

Thank you for Annso’s willing spirit and how she wants the best for our little family. Thank you that we are trying for a 7 pm bedtime for Will, starting tonight. I pray that it would be a good pick and that Will would adapt to it easier than the one we have going at the moment. We want to do what works best for him and for us.

I pray for good use of time and decisiveness to make the right moves at the right time. Like probably all parents, we want to be good ones and do things right.

Having our Bible reading coming right out the book of Job every morning is ironic as we sit here at this little apartment having people come see us one by one. It’s really quite fun, actually.

How can these things “just happen” for any other reason than that God set it up that way?

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“The Lord is God. There is no other besides him.” (Deuteronomy 4:35)